2024 Privacy Everywhere Conference

Leading with Privacy

Privacy Everywhere Conference Logo


Friday, January 26, 2024, from 9am to 4pm
Beckman Institute for Advanced Science and Technology, 405 N. Mathews Ave. Urbana, IL and Online

Free | Lunch available for in-person attendees

Decisions about privacy affect our professional, educational, and personal lives. The in-person conference with streaming available will cover balancing privacy goals and innovation, data rights, data collection risks, and implementing privacy principles in higher ed, among other topics. Leave with a better understanding of privacy policy including legal, ethical, and industry perspectives.


Session Descriptions and Speakers

Online Advertising and National Security

Behind the scenes on almost all websites and apps is a system that operates auctions for ad space. That system, called “Real Time Bidding”, causes a vast and ongoing data breach. As a result, intimate data about U.S. leaders and military personnel is leaking to China and elsewhere.

  • Dr. Johnny Ryan, FRHistS, is Senior Fellow at the Irish Council for Civil Liberties and Senior Fellow at the Open Markets Institute. He is focused on surveillance, data rights, competition/anti-trust, and privacy. Open Markets called him “a renowned global privacy expert”. Protocol named him “The thorn in Google’s side”. Tagesspiegel listed him as one of the digital people who shaped 2021. Die Zeit calls him “Google’s biggest headache”. He was awarded the EPIC International Champion of Privacy Award 2023. He currently has litigation and regulatory proceedings in several jurisdictions. Dr Johnny Ryan – Irish Council for Civil Liberties (iccl.ie) 

Balancing AI Innovation and Privacy

As AI becomes more integrated into our daily lives, it raises significant privacy concerns. This panel will specifically focus on the privacy and data risk aspects associated with human-computer interactions and technological advancements, including Large Language Models. Our conversation will comprehensively explore significant challenges, delving into the ethical aspects of data collection and the extensive ramifications of algorithmic decision-making. Additionally, we will discuss approaches for understanding and interpreting AI in organizations despite the potential risks involved. By addressing the current AI challenges and benefits, we aim to highlight the necessity for trustworthy AI. Join us for an engaging roundtable discussion exploring the complex relationship between privacy and AI in our increasingly interconnected world. We look forward to hearing audience perspectives as we explore this nuanced topic.

  • Christopher Lee – Principal Privacy Engineer, MITRE
  • Michael Curtin – Innovation Coordinator, UIUC
  • Ece Gumusel – Privacy Analyst, UIUC

Defending Your Digital Kingdom: Phone Settings to Shield Your Privacy

Technology Services’ Cybersecurity Training and Awareness Team invites you to explore the majestic halls and dark cellars of your smartphone’s settings, revealing the secrets to fortifying your digital kingdom. In this session, you’ll discover how to construct an impenetrable moat of privacy and keep your most treasured secrets safe. We’ll also share case studies and cutting-edge research that shed light on the undeniable importance of leveraging these powerful privacy features. Let us help you become the guardian of your digital domain! 

  • Isaac Galvan, Lead Cybersecurity Training Specialist, Technology Services, University of Illinois at Urbana-Champaign  

Privacy From a Covered Entity’s Perspective

Understand the importance of maintaining privacy and confidentiality standards within a healthcare environment, the regulatory framework to which a covered entity must adhere, and common roadblocks experienced with sharing patient information.

  • Allison Slocum serves as the Vice President, Corporate Integrity Officer and Regulatory Counsel for Carle Health.  She holds master’s degrees in health administration and geriatric health and is a graduate of the University of Illinois Law School, summa cum laude, practicing healthcare law. She regularly provides counsel to internal stakeholders focusing on privacy standards and the federal regulatory environment.   

Regulated Research and CUI at Illinois

Protecting Controlled Unclassified Information (CUI) is a critical concern for UIUC’s research community. Many of our researchers are already working on projects from Federal agencies with CUI requirements in data handling, access, and protection. We’ll discuss CUI at the University, its requirements for handling and protection, and our growing Regulated Research compliance program. We will discuss ongoing efforts, support, and what to expect in the future of CUI in research.

  • Josh Erenberg is the Regulated Research Program Manager within Technology Services. In this role, he enables Federally funded research projects on campus with Controlled Unclassified Information through technology and consultation, as well as expanding the University’s capabilities to conduct this research. In coordination with the Research Administration community, Josh is developing the systems, processes, and support structures to facilitate regulated research from proposal to disposal.

Students In the Data: Learning Analytics and Privacy   

As higher education institutions and vendors pursue ever increasing data gathering on students through electronic and physical spaces, they must also address the significant risks for privacy breaches and other significant questions about data capture and use. How do we understand where students’ data actually goes and by whom it is used? Which students’ risk being most impacted by this data collection? Does the data gathering actually assist current students? In this presentation, Abigail Goben will review findings from a multi-year investigation into student perceptions of privacy and discuss considerations and obligations of institutions and students to understand and advocate for privacy-respecting practices.

  • Abigail Goben, MLS, is an Associate Professor and Data Management Librarian at the University of Illinois Chicago, where she additionally serves as the Data Policy Advisor in the Office of the Vice Chancellor for Research. She was a co-investigator for the IMLS funded DataDoubles project, a US-based study examining undergraduate student perceptions of student privacy and library participation in learning analytics. Her current research projects include the #WomenLaborCOVID project, which examines the impact of the pandemic on women in the workforce; identifying accessibility needs for data set reuse and preservation; and a ten-year retrospective of data librarian job ads.

Riding Safely in the Data Lane: Uber’s Privacy Compliance and App Features

Join us for an insightful panel discussion with two leading experts from Uber as they delve into the world of privacy compliance and the innovative privacy features integrated into the Uber app. Discover how Uber is committed to safeguarding your data while providing a seamless and secure experience. Learn about the latest advancements in technology and Uber’s dedication to protecting your personal information.  

  • Ruby Zefo serves as Uber’s first Chief Privacy Officer and Associate General Counsel, Privacy & Cybersecurity. Her team’s mission is to drive Uber’s efforts to be a trusted steward of users’ personal data in every market where Uber operates. Her role includes leading the global privacy & cybersecurity legal team and co-chairing Uber’s AI Law & Ethics Council.  Her favorite Uber value is Build with Heart. Prior to joining Uber, Ruby was a Vice President at Intel Corporation where she served as Chief Privacy & Security Counsel, Group Counsel for the Artificial Intelligence Products Group, Group Counsel for Intel Security/McAfee, Legal Director for Corporate Affairs, and Legal Director of Trademarks & Brands. Her career history also includes in-house attorney roles at Sun Microsystems and litigation associate at Fenwick & West. Ruby currently serves on the advisory boards of TruU and Relativity, and she has served on the boards of directors of the International Trademark Association, National Cybersecurity Alliance, and International Association of Privacy Professionals.  In 2017, Ruby was named one of Forbes’ 40 Women to Watch Over 40.  She holds a B.S. in business administration with highest honors from the University of California at Berkeley, and a J.D. from Stanford Law School. 
  • Zach Singleton, Senior Product Manager, Marketplace Trust & Privacy Engineering, Uber 

Big 10 Privacy Panel

Privacy professionals from around the Big 10 will discuss our various privacy programs and how we implement privacy principles at our universities. We’ll touch on our available resources and strategies we have used for expanding a culture of privacy awareness, plus where we’re all headed. Audience participation is encouraged.

  • Jennifer Elliott, Senior Privacy Officer, The Ohio State University
  • Joseph Gridley, Chief Data Privacy Officer, University of Maryland
  • Lauren Popp, Chief Health Information Privacy Compliance Officer, University of Minnesota
  • Phil Reiter, Associate Director, Privacy, University of Illinois, Urbana-Champaign